The other night when we came in Madelyn was all wrapped up like a little "baby burrito" and she looked so cute and comfy... the picture doesn't do it justice. The nurses tried her off of her nasal cannula for a period of time yesterday but apparently she started getting tired and needed to be put back on it in the evening. Breathing is hard work.
Georgia needed a new feeding tube the other night so we were given a rare chance to see her without anything on her face. She wasn't quite sure what to think.
Georgia had another head ultrasound this morning and the results came back showing everything to be stable. Neuro surgery is still following her and likes to order lots of ultrasounds which in a way makes me feel better but also worried everytime.
Both girls are scheduled for eye exams next Thursday the 30th. They will be checked for Retinopathy of Prematurity (ROP) which is an eye disease that occurs in babies born too early. Blood vessel growth in the eye is very active the last 3 months of pregnancy and since the girls missed out on this time of development there is a possibility that the retina and blood vessels in their eyes did not develop fully. ROP is most common in babies born weighing under 900 grams and both of our girls were born around 830 grams. Mild ROP can often heal itself but more severe versions require laser surgery and can even result in loss of vision. Please keep their little eyes in your prayers.
We have talked to the doctors about Madelyn's upcoming surgery and they say they are thinking it will be about 3-4 weeks from now. She currently weighs about 1200 grams and the surgeon would like her to be closer to 2000 grams for surgery which would be about 4 lb 6oz. Based on her weight gain trend they think she will be there by the end of August.
On another note I figured out how to make it possible to receive comments to the blog without requiring people to become registered users or any of that hassle in case anyone was interested. We love hearing from people who are following our girls and are amazed by the stories of complete strangers who feel compelled to pray and care for our family.
4 comments:
Hello! Each time I read one of your posts, I couldn't be more excited for your family! What an amazing journey you have been on. The NICU staff must just be in amazement at your two little beauties. I know I am (not that I am an expert). Love the pics with the cute little hats on - glad you were able to use them! So, so, so happy for you!
I cannot wait to see them in real life. Things seem to moving along and they have grown so much!! They're crazy beautiful!! Seeing your little family makes me want to have one too! I love you guys, see you soon? please?! - Steph Purdey
We are so happy to see the girls are improving everyday! Your strength is inspiring and I can only imagine what a difficult, but rewarding time it has been since their birth. We continue to pray for thier growth and health! Molly Lewis (Owen and Kiera Lewis' mom)
We continue to pray for your beautiful girls and their awesome family. "Children are a sign that God wants the world to go on!" They're as beautiful as the family they've been gifted to.
The Crepeau family
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